My Health Choices My Way: How We Are Transforming Health Care Transitions for Young People with Intellectual Disability

When young people with intellectual disability turn 18, they have to move from children's health services to adult health services. This is called a health care transition, and for many young people, it goes badly wrong.

Support can disappear overnight. Doctors don't always share information with each other. And the new system is often not set up to include people with disability properly.

My Health Choices My Way is a research program that is working to address this. It is funded by the Australian Government's Medical Research Future Fund and led by UNSW's Disability Innovation Institute.

We spent five years talking with over 100 young people with intellectual disability before we started. They told us two things matter most: being supported to make their own health choices, and being treated as a person, not just a diagnosis.

What makes this project different is that people with intellectual disability are not just research participants. They are researchers, decision-makers and leaders in the project from start to finish.

In this webinar, we will share:

• What the problem is and why it matters
• What we are going to do about it
• How we are making sure the people most affected are leading the way
  

This session is for anyone who works in health, disability, education or advocacy, and anyone who believes young people with disability deserve better.

Presenters

• Iva Strnadová
• Elizabeth Emma Palmer
• Julie Loblinzk Refalo OAM
• Skie Sarfaraz

Register

---

The Royal Australasian College of Physicians publishes notices of events as a service to members. Such publication does not constitute endorsement or mandating of the event.