Biography

I am a neonatologist and the inaugural Chair of Neonatology, Mater Research and the University of Queensland, Queensland. At the Royal Australasian College of Physicians, I am the Editor in Chief of the Journal of Paediatrics and Child Health and previously, Chair of the Paediatric Research Committee, member of the Paediatric and Child Health and Development Council and the College Journal Committee. My research and policy expertise in in how oxygen is used in the delivery room for sick newborn infants and in the care of the family affected by prenatal substance exposure. I have led guidelines for the United Nations Office of Drug Control and NSW Health. I am committed to international education, appointed as the vice director of operations for the Ipokrates foundation, a non-profit organization with the mission to provide affordable education in neonatology around the world.

Short project description

Joining the Dots is a project that uses linked administrative data for babies born in New South Wales (NSW) between 2001 to 2025, including their mothers (~2.6 million persons) to determine outcomes until adulthood of children and mothers with life vulnerabilities and identify opportunities for support. Dots is the largest dataset in the world. We have overcome critical barriers including 1) ethics approval 2) receipt of data and 3) endorsement from key stake holders (lived experience, Dept of Communities and Justice NSW). The data has been used to support 20 undergraduate, 2 PhD and 2 physician trainees so far, resulting in 5 high impact papers (Lancet Child and Adolescent Health and JAMA Pediatrics) and prizes for our students (travel awards, RACP best project) Funding will enable us to extend our cohort to include 1.2 million more mother infant dyads (to 2025) and outcomes to 25 years (unprecedented duration of follow-up).

Biography

Angela is a clinician health service researcher, working at the University of Sydney as Professor of Clinical Epidemiology and as a Transplant Physician at Westmead Hospital. Her interests centre on health equity, in the context of multi-morbidity, specifically transplantation, cancer, infection and cardiovascular disease. She holds leadership positions with the Australia and New Zealand Society of Nephrology and the Transplantation Society of Australia and New Zealand. She is a terrible but persistent runner, likes knitting, and keeps chickens.

Short project description

Until now, it has been very hard for people to understand their likely journey on kidney transplant waitlist. I built WaitList Navigator, for kidney doctors and their patients to use together. It shows likely outcomes for waitlisted people, personalised by their age, sex, and other health information. WaitList Navigator shows what is likely to happen in the first 1-5 years of waiting, including how likely it is to get a transplant, to be temporarily or permanently suspended from the waitlist to remaining waiting, or to die while waiting.

The WAIT-NAVI Pilot will do 3 things:

1. update the WaitList Navigator to include data for Aotearoa New Zealand
2. test the WaitList Navigator in clinical practice
3. improve the WaitList Navigator based on the feedback we get.

At the end of the WAIT-NAVI Pilot we will make WaitList Navigator freely available to a wider group of clinicians, patients, and caregivers